I was diagnosed with MS in 2001, two years after starting college in NYC and being diagnosed with a stroke. I’d just had heart surgery to close a PFO they thought caused my ‘stroke’ and so I had about a month of feeling almost like a ‘normal’ 20 year old girl until my left side got weak, and a month later being diagnosed with MS.
I graduated from Parsons School of Design on time in 2003 and had a baby in 2006, six months later I left an abusive relationship and after about 6 months of couch surfing, moved back to the west coast, landing in Seattle Washington.
I was very functional, a young single mom working hard at a software company and quickly being promoted through the company. I got married and pregnant in 2008. Once I was 8 months pregnant I was laid off in the third round of layoff’s the company I worked for in February 2009.
After having my baby at home, yes it was planned that way, I had one of the worst flares I have ever had. When I was online looking for resources for moms with multiple sclerosis I came up short. Being a problem solving designer/techie type, I realized that MomsWithMS.com/org was NOT registered, and I decided it was time for us to have a place to go. I registered both domains, .com is a private community for moms and the .org will soon be the main page and mostly a public resource about what we experience as Moms with MS.
As I am writing this, we have submitted our application to become a national team for the NMSS, we have over 345 members on the site in over 6 countries and over 35 states in the US. I am so happy to be a part of this wonderful group of women that is growing daily and so lucky that I discovered that domain was available.
Moms with MS is a community by and for moms diagnosed with multiple sclerosis to compare notes and support each other through the joys and sorrows of parenting and dealing with multiple sclerosis.